ahimsa<p>"The History of ME deserves a late-night spotlight. That’s why we started the <a href="https://disabled.social/tags/JohnVsJonVsME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>JohnVsJonVsME</span></a> campaign"</p><p><a href="https://thesicktimes.org/2025/03/31/the-history-of-me-deserves-a-late-night-spotlight-thats-why-we-started-the-johnvsjonvsme-campaign/?mc_cid=8b14b5fbfd" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">thesicktimes.org/2025/03/31/th</span><span class="invisible">e-history-of-me-deserves-a-late-night-spotlight-thats-why-we-started-the-johnvsjonvsme-campaign/?mc_cid=8b14b5fbfd</span></a></p><p>This campaign was inspired by George Monbiot who called the history of mistreatment of people with Myalgic Encephalomyelitis (ME) the “greatest medical scandal of the 21st century”</p><p>Note: Most patients in the USA get a diagnosis of ME/CFS, not ME. CDC info here:</p><p><a href="https://www.cdc.gov/me-cfs/about/index.html" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">cdc.gov/me-cfs/about/index.htm</span><span class="invisible">l</span></a></p><p><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a> <a href="https://disabled.social/tags/COVID19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID19</span></a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a></p>
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#LongCovid
122 posts · 96 participants · 15 posts today
Andrew Gifford ME/CFS photos<p>Six photographs about the drudge of ME/CFS:</p><p><a href="https://andrewgiffordphotography.substack.com/p/six-photographs-about-the-drudge" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">andrewgiffordphotography.subst</span><span class="invisible">ack.com/p/six-photographs-about-the-drudge</span></a></p><p>Sorry it's been a while since my last batch, I didn't have much capacity over the winter. Please do share!</p><p><a href="https://mastodon.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> <a href="https://mastodon.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://mastodon.social/tags/MEandLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEandLC</span></a> <a href="https://mastodon.social/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pwME</span></a> <a href="https://mastodon.social/tags/Photography" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Photography</span></a> <a href="https://mastodon.social/tags/DocumentaryPhotography" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>DocumentaryPhotography</span></a> <a href="https://mastodon.social/tags/ConcernedPhotography" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ConcernedPhotography</span></a></p>
Anti. 🐘<p><a href="https://chaos.social/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCOVID</span></a> </p><p>Has anyone ever experienced a delayed crash, is this possible? </p><p>Over a week ago i had a long (but fun) day. In the days that followed i had some muscular and skeletal issues. But it was bearable. Thought i got lucky.</p><p>Only yesterday a "proper" crash started, with a headache, swollen lymph nodes, a grippal feeling and air hunger.</p>
Jon Hancock<p>Don't play a great many computer games these days, but having learned that I can use a cloud-based gaming service that avoids the need to buy a more modern computer I've been giving Atomfall a go.</p><p>Great fun on the whole, although today I found my long covid symptoms were really getting in the way. I had to get an Xbox controller to use the games, not a joystick I'm familiar with, and there was too much confusion in trying to remember which of the many, many buttons did what. Yesterday went far more smoothly, so I know it's not purely down to me being distinctly sub-mediocre at these games. Packed up for the day after I lost count of how many times I'd been trounced by outlaws.</p><p>I do need to read the instructions again, though, as I'm discovering functions I'd missed. For instance, it turns out that my character can throw knives and similar weapons. I discovered this when facing an outlaw, as I pressed something and watched as Our Hero tossed the knife—the knife he was trying to fend off an attacker with—into some dense shrubbery, thus neatly disarming himself.</p><p><a href="https://social.vivaldi.net/tags/Games" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Games</span></a> <a href="https://social.vivaldi.net/tags/VideoGames" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>VideoGames</span></a> <a href="https://social.vivaldi.net/tags/Atomfall" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Atomfall</span></a> <a href="https://social.vivaldi.net/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a></p>
AutoDefensa Sanitaria<p>COVID 101: cuidados, análisis político de la normalización y respuesta<br>Hacemos la misma formación ambos días<br>ABRIL 2 y 3 (miércoles y jueves)<br>pídenos el enlace en AutoDefensaSanitaria@proton.me<br><a href="https://mastodon.social/tags/MaskUp" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MaskUp</span></a> <a href="https://mastodon.social/tags/WearAMask" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>WearAMask</span></a> <a href="https://mastodon.social/tags/CovidRealist" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidRealist</span></a> <a href="https://mastodon.social/tags/CovidIsAirbone" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidIsAirbone</span></a> <a href="https://mastodon.social/tags/LlevaMascarilla" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LlevaMascarilla</span></a> <a href="https://mastodon.social/tags/RealistaCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>RealistaCovid</span></a> <a href="https://mastodon.social/tags/CovidSonAerosoles" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidSonAerosoles</span></a> <a href="https://mastodon.social/tags/birdflu" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>birdflu</span></a> <a href="https://mastodon.social/tags/gripeaviar" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>gripeaviar</span></a> <a href="https://mastodon.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a></p>
Aphrodite ☑️ :boost_ok:<p>tfw when you can’t tell if your body is telling you to fork off for burning through your spoons because of <a href="https://chaos.social/tags/longCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longCovid</span></a> or because you literally uprooted your entire life last week or the jet lag is kicking your backside or your gi is upset because you had to feed it american food for two weeks or…</p>
Groschenromanautorin<p><span class="h-card" translate="no"><a href="https://nrw.social/@Chaotica" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>Chaotica</span></a></span></p><p>Ebenso "unerklärlich" ist die übrigens auch die schlagartig aufgetretene ausgeprägte Aortensklerose... 🤔 </p><p><a href="https://literatur.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a></p>
Groschenromanautorin<p><span class="h-card" translate="no"><a href="https://nrw.social/@Chaotica" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>Chaotica</span></a></span></p><p>Ja, ich vermute stark, dass <a href="https://literatur.social/tags/Hashimoto" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Hashimoto</span></a> zu meinen anderen <a href="https://literatur.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> -Symptomen noch hinzukommt. Seitens Hausärztin ernte ich diesbezüglich allerdings nur Gaslighting, obwohl ich schon zuvor wg Unterfunktion in Behandlung, und eigentlich mit L-Thyroxin gut eingestellt war. Seit der Covid-Infektion vor 4 Jahren laufen die Schilddrüsen-Werte, und mein Gewicht, allerdings aus "unerklärlichen" Gründen total aus dem Ruder 😬</p><p><span class="h-card" translate="no"><a href="https://norden.social/@gse" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>gse</span></a></span></p>
datum (n=1)<p><span class="h-card" translate="no"><a href="https://aus.social/@DenisCOVIDinfoguy" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>DenisCOVIDinfoguy</span></a></span> they also cite <a href="https://pubmed.ncbi.nlm.nih.gov/35810238/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">pubmed.ncbi.nlm.nih.gov/358102</span><span class="invisible">38/</span></a></p><p>which has this absolute adjective of a hypothesis:</p><blockquote><p>SARS-CoV-2 may bind to ACE2 in order to enter the host brainstem cell and change baroreflex sensitivity</p></blockquote><p>because</p><blockquote><p>The integral parts of the brain renin-angiotensin system, as ACE2 enzyme, are highly expressed in the brainstem, which may also be involved in baroreflex sensitivity, playing an important role in HRV. </p></blockquote><p>which would help explain POTS!!</p><p><a href="https://zeroes.ca/tags/COVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID</span></a> <a href="https://zeroes.ca/tags/COVID19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID19</span></a> <a href="https://zeroes.ca/tags/SARS2" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SARS2</span></a> <a href="https://zeroes.ca/tags/SARSCoV2" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SARSCoV2</span></a> <a href="https://zeroes.ca/tags/CovidIsNotOver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidIsNotOver</span></a> <a href="https://zeroes.ca/tags/health" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>health</span></a> <a href="https://zeroes.ca/tags/maskUp" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>maskUp</span></a> <a href="https://zeroes.ca/tags/cleanAir" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>cleanAir</span></a> <a href="https://zeroes.ca/tags/AirborneAware" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>AirborneAware</span></a> <a href="https://zeroes.ca/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCOVID</span></a></p>
datum (n=1)<p><span class="h-card" translate="no"><a href="https://aus.social/@DenisCOVIDinfoguy" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>DenisCOVIDinfoguy</span></a></span> I was just reading this!</p><p><a href="https://www.nature.com/articles/s41598-024-82411-w" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">nature.com/articles/s41598-024</span><span class="invisible">-82411-w</span></a> has tidbits that range from interesting to wow</p><blockquote><p>non-hospitalized individuals who had COVID-19 present a decrease in heart rate variability with a predominance of the sympathetic nervous system; (2) above all, those evaluated early in the first weeks after infection have less parasympathetic modulation; (3) <strong>moderate to large effect sizes were found when comparing groups</strong>; (4) the time after diagnosis influences positively while age is negatively associated with HRV parameters</p></blockquote><p>and in a bit of detail:</p><blockquote><p>the LF band, which reflects both modulations but with greater sympathetic predominance, showed a significant increase in the evaluated group during the first weeks after infection, with a tendency to decrease over time. In contrast, the HF band, which reflects parasympathetic activity, exhibited a significant reduction in those evaluated early, indicating diminished parasympathetic activity. However, <strong>no increase in this variable was observed over time.</strong></p></blockquote><p>which they immediately explain:</p><blockquote><p>This behavior can be attributed to the different recovery dynamics of the sympathetic and parasympathetic nervous systems after stressors like infection. Sympathetic modulation tends to normalize more quickly following the acute stress response, whereas parasympathetic modulation requires more time to recover, especially after inflammatory states. Additionally, COVID-19 induces vagal suppression, which reduces parasympathetic activity and prolongs its recovery period</p></blockquote><p>vagal refers to the vagus nerve folks, stay calm</p><p><a href="https://zeroes.ca/tags/COVID19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID19</span></a> <a href="https://zeroes.ca/tags/COVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID</span></a> <a href="https://zeroes.ca/tags/heart" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>heart</span></a> <a href="https://zeroes.ca/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCOVID</span></a></p>
demian 😷☭⚧ (he/they)<p>Si eres antiimperialista y no usas mascarilla: estás traicionando tus principios. Las personas discapacitadas llevan avisando tiempo. el COVID no se va porque se le ignore. Estamos ante un evento que sigue matando y discapacitando. Tus camaradas discapacitados te lo estamos avisando. Nos necesitamos.<br><a href="https://mastodon.social/tags/MaskUp" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MaskUp</span></a> <a href="https://mastodon.social/tags/WearAMask" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>WearAMask</span></a> <a href="https://mastodon.social/tags/CovidRealist" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidRealist</span></a> <a href="https://mastodon.social/tags/CovidIsAirbone" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidIsAirbone</span></a> </p><p><a href="https://mastodon.social/tags/LlevaMascarilla" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LlevaMascarilla</span></a> <a href="https://mastodon.social/tags/RealistaCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>RealistaCovid</span></a> <a href="https://mastodon.social/tags/CovidSonAerosoles" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidSonAerosoles</span></a> <a href="https://mastodon.social/tags/birdflu" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>birdflu</span></a> <a href="https://mastodon.social/tags/gripeaviar" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>gripeaviar</span></a> <a href="https://mastodon.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a></p>
Córdoba AutoDefensa Sanitaria<p>LLEVAR MASCARILLA ES MUCHO MÁS ANTICAPITALISTA DE LO QUE CREES<br><a href="https://mastodon.social/tags/anticapitalismo" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>anticapitalismo</span></a> <a href="https://mastodon.social/tags/antiimperialismo" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>antiimperialismo</span></a> <a href="https://mastodon.social/tags/MaskUp" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MaskUp</span></a> <a href="https://mastodon.social/tags/WearAMask" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>WearAMask</span></a> <a href="https://mastodon.social/tags/CovidRealist" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidRealist</span></a> <a href="https://mastodon.social/tags/CovidIsAirbone" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidIsAirbone</span></a> </p><p><a href="https://mastodon.social/tags/LlevaMascarilla" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LlevaMascarilla</span></a> <a href="https://mastodon.social/tags/RealistaCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>RealistaCovid</span></a> <a href="https://mastodon.social/tags/CovidSonAerosoles" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidSonAerosoles</span></a> <a href="https://mastodon.social/tags/birdflu" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>birdflu</span></a> <a href="https://mastodon.social/tags/gripeaviar" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>gripeaviar</span></a> <a href="https://mastodon.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a></p>
Málaga AutoDefensa Sanitaria<p>¿Cuál es el punto de todo esto? ¿está ayudando a algo el llevar mascarilla y hablar del COVID?<br><a href="https://mastodon.social/tags/MaskUp" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MaskUp</span></a> <a href="https://mastodon.social/tags/WearAMask" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>WearAMask</span></a> <a href="https://mastodon.social/tags/CovidRealist" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidRealist</span></a> <a href="https://mastodon.social/tags/CovidIsAirbone" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidIsAirbone</span></a> </p><p><a href="https://mastodon.social/tags/LlevaMascarilla" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LlevaMascarilla</span></a> <a href="https://mastodon.social/tags/RealistaCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>RealistaCovid</span></a> <a href="https://mastodon.social/tags/CovidSonAerosoles" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidSonAerosoles</span></a> <a href="https://mastodon.social/tags/birdflu" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>birdflu</span></a> <a href="https://mastodon.social/tags/gripeaviar" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>gripeaviar</span></a> <a href="https://mastodon.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a></p>
Tom Kindlon<p>Brain Structural Abnormalities in Patients with <a href="https://disabled.social/tags/PostCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PostCOVID</span></a> -19 Headache</p><p><a href="https://www.mdpi.com/2035-8377/17/4/50" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">mdpi.com/2035-8377/17/4/50</span><span class="invisible"></span></a></p><p>Retrospective 30 vs 30 MRI case/control study. "One of our most noteworthy findings is that white matter lesions were identified in 50% of the post- <a href="https://disabled.social/tags/COVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID</span></a>-19 group, compared to 20% in the control group”</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span><br><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwLC</span></a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PostCovidSyndrome</span></a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LC</span></a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PASC</span></a> <a href="https://disabled.social/tags/CovidBrain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidBrain</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/covid19" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>covid19</span></a></span> <a href="https://disabled.social/tags/COVID19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID19</span></a> <a href="https://disabled.social/tags/COVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID</span></a> <a href="https://disabled.social/tags/COVID_19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID_19</span></a> <a href="https://disabled.social/tags/SARSCoV2" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SARSCoV2</span></a> <a href="https://disabled.social/tags/CovidIsNotOver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidIsNotOver</span></a> <a href="https://disabled.social/tags/auscovid19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>auscovid19</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/auscovid19" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>auscovid19</span></a></span></p>
Tom Kindlon<p>The US administration has proposed many cuts that may affect ME/CFS or <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> research</p><p>Image is from latest Science for ME weekly update</p><p>Links:</p><p><a href="https://www.science.org/content/article/saying-pandemic-over-nih-institute-starts-cutting-covid-19-research" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">science.org/content/article/sa</span><span class="invisible">ying-pandemic-over-nih-institute-starts-cutting-covid-19-research</span></a></p><p><a href="https://www.scientificamerican.com/article/hhss-long-covid-office-is-closing-what-will-this-mean-for-future-research/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">scientificamerican.com/article</span><span class="invisible">/hhss-long-covid-office-is-closing-what-will-this-mean-for-future-research/</span></a></p><p><a href="https://thesicktimes.org/2025/03/28/update-recover-long-covid-pathobiology-grants-restored/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">thesicktimes.org/2025/03/28/up</span><span class="invisible">date-recover-long-covid-pathobiology-grants-restored/</span></a></p><p><a href="https://www.fiercebiotech.com/research/stuck-precipice-funding-cuts-leave-chronic-fatigue-field-dangling-edge-clinical" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">fiercebiotech.com/research/stu</span><span class="invisible">ck-precipice-funding-cuts-leave-chronic-fatigue-field-dangling-edge-clinical</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span><br><a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PASC</span></a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>postcovid</span></a> <a href="https://disabled.social/tags/postcovid19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>postcovid19</span></a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PostCovidSyndrome</span></a> <a href="https://disabled.social/tags/COVIDBrain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVIDBrain</span></a> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/covid19" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>covid19</span></a></span> <a href="https://disabled.social/tags/Coronavirus" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Coronavirus</span></a><br><a href="https://disabled.social/tags/COVID19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID19</span></a> <a href="https://disabled.social/tags/COVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID</span></a> <a href="https://disabled.social/tags/COVID_19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID_19</span></a> <a href="https://disabled.social/tags/COVID%E3%83%BC19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVIDー19</span></a> <a href="https://disabled.social/tags/SARSCoV2" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SARSCoV2</span></a> <a href="https://disabled.social/tags/CovidIsNotOver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidIsNotOver</span></a> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/auscovid19" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>auscovid19</span></a></span></p>
Denis - The COVID info guy -<p>🇺🇸 USA: ‘Shrinking my world really small’: How New Yorkers are coping with long COVID.</p><p>"One of the most common reported symptoms is chronic, debilitating fatigue. That’s often paired with a punishing condition known as post-exertional malaise — a crash that comes after too much mental or physical activity."</p><p>Source: <a href="https://gothamist.com/news/shrinking-my-world-really-small-how-new-yorkers-are-coping-with-long-covid" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">gothamist.com/news/shrinking-m</span><span class="invisible">y-world-really-small-how-new-yorkers-are-coping-with-long-covid</span></a> </p><p><a href="https://aus.social/tags/longCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longCOVID</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/auscovid19" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>auscovid19</span></a></span></p>
Bass #AlleBurgers #EcoHumanist<p><a href="https://mastodon.nl/tags/ejustin46" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ejustin46</span></a> on X wrote:</p><p>For CHILDREN, the risk of LONG COVID after a SECOND INFECTION is 2.08 TIMES GREATER compared to the FIRST INFECTION.<br><a href="https://medrxiv.org/content/10.1101/2025.03.28.25324858v1" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">medrxiv.org/content/10.1101/20</span><span class="invisible">25.03.28.25324858v1</span></a></p><p><a href="https://mastodon.nl/tags/LongCovidKids" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidKids</span></a> <a href="https://mastodon.nl/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> <span class="h-card" translate="no"><a href="https://forall.social/@alleburgers" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>alleburgers</span></a></span> <span class="h-card" translate="no"><a href="https://forall.social/@whn" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>whn</span></a></span> <span class="h-card" translate="no"><a href="https://forall.social/@ABScientist" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>ABScientist</span></a></span></p>
Bass #AlleBurgers #EcoHumanist<p><a href="https://mastodon.nl/tags/StLongCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>StLongCOVID</span></a> op X schrijft:</p><p>Op zaterdag 12 april vindt de eerste <a href="https://mastodon.nl/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCOVID</span></a> Patiëntendag plaats in de <a href="https://mastodon.nl/tags/JaarbeursUtrecht" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>JaarbeursUtrecht</span></a> en via livestream. Een dag speciaal voor patiënten en hun naasten, gericht op informatie, herkenning en verbinding: </p><p><a href="https://longcovidnederland.com/long-covid-patientendag-2025/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">longcovidnederland.com/long-co</span><span class="invisible">vid-patientendag-2025/</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span></p>
Patient-Led Research<p>PLRC co-founder Hannah Davis and member Janna Moen spoke to the <span class="h-card" translate="no"><a href="https://mstdn.social/@washingtonpost" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>washingtonpost</span></a></span> about what we know about <a href="https://mastodon.social/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCOVID</span></a> and the brain.</p><p>Article link here and in bio:<br><a href="https://www.washingtonpost.com/wellness/2025/03/27/long-covid-brain-cognition/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">washingtonpost.com/wellness/20</span><span class="invisible">25/03/27/long-covid-brain-cognition/</span></a></p><p>Visit our Instagram for all slides:<br><a href="https://www.instagram.com/patientled/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">instagram.com/patientled/</span><span class="invisible"></span></a></p>
Tino Eberl<p>Beim fünften Runden Tisch in <a href="https://mastodon.online/tags/Berlin" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Berlin</span></a> wurden Fortschritte im Umgang mit <a href="https://mastodon.online/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> vorgestellt.</p><p>Laut <a href="https://mastodon.online/tags/Gesundheitsminister" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Gesundheitsminister</span></a> <a href="https://mastodon.online/tags/Lauterbach" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Lauterbach</span></a> zeigen erste Maßnahmen Wirkung, auch wenn es noch keine Heilung gibt. Besonders die <a href="https://mastodon.online/tags/Forschung" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Forschung</span></a> in <a href="https://mastodon.online/tags/Deutschland" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Deutschland</span></a> hebt sich europaweit hervor.</p><p>73 Millionen Euro fließen in Versorgungsprojekte, weitere 45 Millionen in die Betreuung von Kindern und Jugendlichen. <a href="https://mastodon.online/tags/Pharmaunternehmen" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Pharmaunternehmen</span></a> investieren laut Lauterbach bisher zu wenig.</p><p><a href="https://www.zdf.de/nachrichten/politik/corona-forschung-long-covid-lauterbach-100.html" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">zdf.de/nachrichten/politik/cor</span><span class="invisible">ona-forschung-long-covid-lauterbach-100.html</span></a></p><p><a href="https://mastodon.online/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> <a href="https://mastodon.online/tags/PostCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PostCovid</span></a></p>
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