Create accountLogin

Recent searches

No recent searches

Search options

Only available when logged in.
mastodon.gamedev.place is one of the many independent Mastodon servers you can use to participate in the fediverse.
Mastodon server focused on game development and related topics.

Administered by:

Server stats:

5.1K
active users

mastodon.gamedev.place: AboutProfiles directoryPrivacy policy

Mastodon: AboutGet the appKeyboard shortcutsView source codev4.3.8

#PostCovid

20 posts12 participants0 posts today
Public
Tino Eberl

Viele #MECFS- und #PostCovid-Betroffene in #Österreich erhalten trotz gravierender Einschränkungen keine #Berufsunfähigkeitspension oder kein #Pflegegeld.

Eine gemeinsame Recherche zeigt, dass 79 % der eingereichten Anträge abgelehnt wurden, oft ohne Anerkennung der Diagnosen oder des Leitsymptoms #PEM.

Fachleute kritisieren veraltete Gutachtenstandards, fehlende Hausbesuche und die häufige Umdeutung körperlicher Beschwerden in psychische Diagnosen.

derstandard.at/story/300000026

DER STANDARDPost-Covid- und ME/CFS-Betroffenen bleiben Berufsunfähigkeitspension und Pflegegeld oft verwehrtDas zeigt eine Recherche von APA, ORF und "Dossier". Laut Pensionsversicherungsanstalt gibt es keine offiziellen Daten
#Sozialrecht
Public
Stadtkind Hannover

!!!Update🪧ME/CFS #LiegendDemo Awareness Days 2025! Übersicht der teilnehmenden Städten, die jeweils am 10.- 12.05. eine LiegendDemo organisieren. 🪧💪
Wir freuen uns, wenn ihr dabei seid. 💕 #LiegendDemo #MECFS #LongCovid #Forschung @fatigatio.mecfs #PostCovid #PostVac #Belastungsintoleranz #demonstration #epsteinbarrvirus #influenza #mecfsawareness #Infektionsschutz #dieMaskebleibtauf #COVIDisAirborne #CovidIsntOver #MillionMissing #CureMECFS #FightMECFS"

Public
Tom Kindlon

From Sweden:

Complement activation was not increased in patients with post-acute sequelae after mild SARS-CoV-2 infection: A prospective cohort study

medrxiv.org/content/10.1101/20

Screenshot is from the latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #CovidIsNotOver
@auscovid19 #auscovid19

Preprint: MedRxiv Complement activation was not increased in patients with post-acute sequelae after mild SARS-CoV-2 infection: A prospective cohort study — Madlene Holmqvist et al. "We analyzed the complement activation markers C3bc, C3bBbP and TCC in 48 PASC patients." "Although the patients with a mild SARS-CoV-2 infection had a trend towards more severe PASC, we could not find any significant differences in complement activation markers between these patients and controls."
Public
Jürgen :verigreen:🌗🪐🌌

Es ist löblich, dass im 🇦🇹 #ÖRR derzeit viel über die Zustände der Versorgung bei #MECFS berichtet und #PostCovid wird.

Aus meiner Sicht - und ich hab so ein Theater mit der #PVA selbst erleben müssen, 7 (!!) Jahre hat das Gerichtsverfahren gedauert gegen Aberkennung #Rehageld - sind in erster Linie die #Gutachter das Problem.

Das was die/der Gutachter/in schreibt ist so. GENAU SO. Und nicht anders. In keinem Fall! Da ist man chancenlos. Unterm Strich entscheidet das #Gutachten.

Diese Doku über dieses System von #Gutachtern sollte man sich anschauen:
3sat.de/gesellschaft/politik-u

3satDie unheimliche Macht der Gutachter – Das System InvalidenversicherungDas System Invalidenversicherung
Public
Tom Kindlon

Long #COVID Is Associated with Severe Cognitive Limitations Among U.S. Adults

mdpi.com/2673-8112/5/4/46

"Overall, 15.1% had #longCOVID. A higher percentage of adults with long COVID (13.1% vs 4.1%) reported severe cognitive limitations compared to no COVID (p < 0.001)”

#CovidBrain #NeuroPASC @longcovid
#PwLC #PostCovidSyndrome #LC #PASC #postcovid @covid19 #COVIDー19 #COVID19 #SARSCoV2 @novid@chirp.social #novid @novid@a.gup.pe #CovidIsNotOver #auscovid19 @auscovid19

Public
Tom Kindlon

New US research funded by Dysautonomia International

Long-COVID Postural Tachycardia Syndrome: A deep phenotyping study
medrxiv.org/content/10.1101/20

"An unexpected finding of our study was that 8.7% of LC-POTS participants exhibited aggregates of P-syn on skin biopsy"

#POTS @pots #dysautonomia @dysautonomia @longcovid
#LongCovid #PwLC #PostCovidSyndrome #LC #PASC #postcovid
#CovidBrain

medRxiv · Long-COVID Postural Tachycardia Syndrome: A deep phenotyping studyBackground: Postural tachycardia syndrome (POTS) has emerged as one of the most common autonomic complications of Long-COVID (LC). However, disease mechanisms remain incompletely understood. Objectives: To evaluate the frequency and severity of autonomic dysfunction in a subset of carefully phenotyped, previously healthy patients with LC-POTS using a detailed protocol of autonomic, cerebrovascular, respiratory, blood, and tissue analyses. Methods: Participants in this study completed a battery of autonomic function tests, including measures of sudomotor, cardiovagal, and sympathetic adrenergic function, and head-up tilt (HUT) with transcranial Doppler measures of cerebral blood flow velocity (CBFv), end-tidal CO2 (ETCO2), cerebral and skeletal muscle near-infrared spectroscopy (NIRS) and plasma catecholamines. Skin biopsy was performed at proximal and distal sites and analyzed for intraepidermal nerve fiber density (IENFD) and phosphorylated α-synuclein (P-Syn). Results were compared to healthy controls (HC) ≥ 3 months post-COVID infection with no lasting sequelae. Results: LC-POTS participants (n=24) exhibited a greater increase in heart rate on HUT (31.1±20.3, p=0.01), and 38% exhibited elevated upright norepinephrine levels consistent with a hyperadrenergic response. CBFv did not significantly differ between LC-POTS and HC (n=10). EtCO2 and NIRS were also similar between groups. Twenty-two percent of LC-POTS and 38% of HC had decreased IENFD on skin biopsy, while 8.7% LC-POTS had dermal P-Syn aggregation on skin biopsy, compared to none of HC. Conclusions: LC-POTS was associated with widespread autonomic dysfunction, including orthostatic tachycardia, sympathetic adrenergic hyperactivity, small fiber neuropathy, and dermal P-Syn deposition. Our findings support the concept of multiple pathophysiological mechanisms in most patients with POTS triggered by SARS-CoV-2. ### Competing Interest Statement Dr. Larsen, Jannika Machnik, Jordan Seliger, and Ruba Shaik have nothing to disclose. Dr. Gibbons has received grant funding from the National Institute of Neurological Disorders and Stroke (NINDS) and the National Institutes of Health (NIH) and has stock options in CND Life Sciences outside the submitted work. Dr. Utz has recieved grant funding from the National Institutes of Health outside of the submitted work. Dr. Lansberg has received consulting fees from Genentech, Biogen, and Novo Nordisk and royalties from a health-related publication. Dr. Muppidi has reported receiving consulting fees from Alexion, Argenx, UCB/Ra Pharma, and Horizont Pharma and royalties from a health-related publication. Dr. Jaradeh reported consulting fees from Alnylam, Akcea, and has received grant funding from Alnylam, outside of the submittedwork. Dr. Miglis has received consulting fees from 2nd MD, Infinite MD, and Jazz Pharmaceuticals, royalties from a health care publication, and grant funding from Ono Pharmaceuticals, the Agency for Healthcare Research and Quality (AHRQ), the National Institutes of Health, and Dysautonomia International, outside the submitted work. ### Funding Statement The study was funded by Dysautonomia International (East Moriches, New York) ### Author Declarations I confirm all relevant ethical guidelines have been followed, and any necessary IRB and/or ethics committee approvals have been obtained. Yes The details of the IRB/oversight body that provided approval or exemption for the research described are given below: IRB of Stanford University gave ethical approval for this work. I confirm that all necessary patient/participant consent has been obtained and the appropriate institutional forms have been archived, and that any patient/participant/sample identifiers included were not known to anyone (e.g., hospital staff, patients or participants themselves) outside the research group so cannot be used to identify individuals. Yes I understand that all clinical trials and any other prospective interventional studies must be registered with an ICMJE-approved registry, such as ClinicalTrials.gov. I confirm that any such study reported in the manuscript has been registered and the trial registration ID is provided (note: if posting a prospective study registered retrospectively, please provide a statement in the trial ID field explaining why the study was not registered in advance). Yes I have followed all appropriate research reporting guidelines, such as any relevant EQUATOR Network research reporting checklist(s) and other pertinent material, if applicable. Yes All data produced in the present study are available upon reasonable request to the authors.
Public
Segebodo

Wer sich mit ME/CFS nicht auskennt, hat keinen Schimmer, was diese Krankheit für die betroffenen Menschen bedeutet.

"Wir brauchen JETZT Hilfe" - Christian Beierer berichtet von seinem ME/CFS erkrankten Sohn:
youtube.com/watch?v=c453oJ5Ebj

Bitte geh am 10., 11. oder 12. Mai zur ME/CFS Demo in Deiner Stadt!
Mach es für die Menschen, die zu krank sind, um es selbst zu tun.
Du findest die Demos unter #LiegendDemo

YouTube„Wir brauchen JETZT Hilfe!“ - Christian Beierer berichtet von seinem ME/CFS erkrankten SohnBy Initiative ME-CFS Freiburg
#MECFS#MyalgischeEnzephalomyelitis#ChronischesFatigueSyndrom
Public
Tom Kindlon

Immune disturbances in individuals with post-COVID syndrome are not characterized by enhanced SARS-CoV-2-specific immunity

dx.doi.org/10.1093/infdis/jiaf

"Persistent immune disturbances in individuals with PCS are characterized by reduced #SARSCoV2 -specific T cell responses, increased B cell activation, and altered inflammatory and vascular biomarkers."

@longcovid
#LongCovid #PwLC #PostCovidSyndrome #LC #PASC #postcovid
#CovidBrain @covid19 #COVIDー19 #COVID19 #COVID #COVID_19

ExploreLive feeds
About