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Tom Kindlon2/Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath<a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicE</a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEeps</a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFSME</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/NeuroME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NeuroME</a> <a href="https://disabled.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mecfs</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#longcovid</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a>

Tom KindlonIt's 8-year anniversary of this paper of mine. It could be useful if somebody feels coerced into doing graded activity or exercise programmes; also to counter claims that the <a href="https://disabled.social/tags/PACEtrial" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PACEtrial</a> showed graded activity programs are safe.<a href="https://journals.sagepub.com/doi/full/10.1177/1359105317697323" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://journals.sagepub.com/doi/full/10.1177/1359105317697323</a><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicE</a> <a href="https://disabled.social/tags/CBT" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CBT</a>

Tom KindlonRemembering ME activist (& my friend) Robert "Bob" Courtney, who passed away on March 7, 2018.This is from the @MEAssociation magazineOne can read about some of the specifics of Bob's work here: <a href="http://me-pedia.org/wiki/Robert_Courtney" rel="nofollow noopener noreferrer" translate="no" target="_blank">http://me-pedia.org/wiki/Robert_Courtney</a><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFS</a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicE</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a> <a href="https://disabled.social/tags/ME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ME</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a>

Tom Kindlon2/ From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team <a href="https://pmc.ncbi.nlm.nih.gov/articles/PMC6468435/pdf/diagnostics-09-00026.pdf" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://pmc.ncbi.nlm.nih.gov/articles/PMC6468435/pdf/diagnostics-09-00026.pdf</a><a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicE</a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEeps</a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFSME</a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFIDS</a> <a href="https://disabled.social/tags/SEID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SEID</a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwLC</a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PostCovidSyndrome</a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#postcovid</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a> @longcovid <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a>

Tom Kindlon14/“ME is a neurological condition, it is a fluctuating life limiting condition that affects every part of the patient’s life.”<a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicE</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mecfs</a>

BenNevisAnother relatively early mention of the term <a href="https://mastodon.org.uk/tags/myalgicencephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#myalgicencephalomyelitis</a> in the UK press from this day, forty-two years ago.The Guardian, UK. 2nd February 1983. <a href="https://mastodon.org.uk/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mecfs</a> <a href="https://mastodon.org.uk/tags/cfsme" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#cfsme</a> <a href="https://mastodon.org.uk/tags/myalgice" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#myalgice</a> @rfh1955

Tom KindlonNew: Digital health app data reveals an effect of ovarian hormones on long COVID and myalgic encephalomyelitis symptoms<a href="https://www.medrxiv.org/content/10.1101/2025.01.24.25321092v1" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.medrxiv.org/content/10.1101/2025.01.24.25321092v1</a>"Menstruation is associated with worsened symptoms in long COVID and ME/CFS"<a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicE</a> Hashtags: <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PASC</a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwLC</a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#postcovid</a> <a href="https://disabled.social/tags/postcovid19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#postcovid19</a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LC</a> <a href="https://disabled.social/tags/Covidlonghaulers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Covidlonghaulers</a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PostCovidSyndrome</a> <a href="https://disabled.social/tags/longhaulers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#longhaulers</a> <a href="https://disabled.social/tags/COVIDBrain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#COVIDBrain</a> <a href="https://disabled.social/tags/NeuroPASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NeuroPASC</a>

Irish ME/CFS Association2/ Details for the next meeting of the Bray ME/CFS adult support group<a href="https://mastodon.ie/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://mastodon.ie/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://mastodon.ie/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://mastodon.ie/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFS</a> <a href="https://mastodon.ie/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicE</a> <a href="https://mastodon.ie/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a> <a href="https://mastodon.ie/tags/Bray" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Bray</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a>

Irish ME/CFS AssociationGP Educational Webinar on <a href="https://mastodon.ie/tags/PVFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PVFS</a> and ME/CFSDr Ros Vallings, a New Zealand GP who is an expert on ME/ <a href="https://mastodon.ie/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFS</a>, will present a free talk followed by a Q&A session on Tuesday, April 8 7:30 PM for just over one hour.<a href="https://irishmecfs.org/blog/april-8-2025-educational-event-for-gps-key-messages-for-primary-care-on-the-diagnosis-and-management-of-post-viral-fatigue-syndrome-and-mecfs" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://irishmecfs.org/blog/april-8-2025-educational-event-for-gps-key-messages-for-primary-care-on-the-diagnosis-and-management-of-post-viral-fatigue-syndrome-and-mecfs</a><a href="https://mastodon.ie/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicE</a> <a href="https://mastodon.ie/tags/PostViralSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PostViralSyndrome</a> <a href="https://mastodon.ie/tags/MedEd" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MedEd</a> <a href="https://mastodon.ie/tags/CFSME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFSME</a> <a href="https://mastodon.ie/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a>

Anil van der ZeeDid you say sorry?!?<a href="https://mastodon.social/tags/BPS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#BPS</a> <a href="https://mastodon.social/tags/harm" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#harm</a> <a href="https://mastodon.social/tags/trauma" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#trauma</a> <a href="https://mastodon.social/tags/appologize" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#appologize</a> <a href="https://mastodon.social/tags/sorry" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#sorry</a><a href="https://mastodon.social/tags/pwme" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwme</a> <a href="https://mastodon.social/tags/myalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#myalgicE</a> <a href="https://mastodon.social/tags/millionsmissing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#millionsmissing</a>PS: subtitles included.<a href="https://youtu.be/jPIYlYddkUk?si=B7-sn8SJJgrithx2" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://youtu.be/jPIYlYddkUk?si=B7-sn8SJJgrithx2</a>

Tom Kindlon2/From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team <a href="https://pmc.ncbi.nlm.nih.gov/articles/PMC6468435/pdf/diagnostics-09-00026.pdf" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://pmc.ncbi.nlm.nih.gov/articles/PMC6468435/pdf/diagnostics-09-00026.pdf</a><a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicE</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEeps</a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFSME</a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFIDS</a> <a href="https://disabled.social/tags/SEID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SEID</a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwLC</a> <a href="https://disabled.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mecfs</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PostCovidSyndrome</a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#postcovid</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a>

Tom Kindlon"The New Year’s Resolutions of a Chronically Ill Person" (2022)Author has <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicE</a> <a href="https://themighty.com/topic/chronic-fatigue-syndrome/new-years-resolutions-chronic-illness/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://themighty.com/topic/chronic-fatigue-syndrome/new-years-resolutions-chronic-illness/</a><a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://disabled.social/tags/Spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonie</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mecfs</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@spoonies</a> <a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicillness</a>

Gwenfar :plantmage6:UK event: Invite your local MP to join the inaugural All-Party Parliamentary Group (APPG) on ME, happening tomorrow.📆 Tuesday 17 December⏰ 5pm - 6.30pmTemplate & update of the inaugural meeting 👇 <a href="https://appgme.co.uk/meetings/appg-inaugural-meeting-17-december-2024/" rel="nofollow noopener noreferrer" target="_blank">https://appgme.co.uk/meetings/appg-inaugural-meeting-17-december-2024/</a><a href="https://rage.love/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a> <a href="https://rage.love/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://rage.love/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicE</a> <a href="https://rage.love/tags/APPG" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#APPG</a><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a>

Tom KindlonFrom @actionforme SequenceME: first of a kind genetic study<a href="https://www.actionforme.org.uk/news/sequenceme/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.actionforme.org.uk/news/sequenceme/</a>“A groundbreaking study will analyse the entire genetic code of up to 17,000 people with ME in a bid to uncover the genetic causes of the illness.”Comment: requires £7 million in funding so may not happen.<a href="https://disabled.social/tags/myalgicencephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#myalgicencephalomyelitis</a> <a href="https://disabled.social/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicE</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a>

Tom KindlonOn its 13-year anniversary, just plugging my paper, "Reporting of Harms Associated with <a href="https://disabled.social/tags/GradedExerciseTherapy" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#GradedExerciseTherapy</a> and <a href="https://disabled.social/tags/CognitiveBehaviouralTherapy" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CognitiveBehaviouralTherapy</a> in <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a>/#ChronicFatigueSyndromePoints raised are still very relevant now; if graded exercise/activity approaches are seen as safe, it's quite possible pressure could be put on some patients to undertake them.<a href="https://drive.google.com/drive/folders/1vzCvi86gv-aManb9wywg-mJYKE9sjjky" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://drive.google.com/drive/folders/1vzCvi86gv-aManb9wywg-mJYKE9sjjky</a><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFS</a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicE</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a> <a href="https://disabled.social/tags/ME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ME</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/CBT" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CBT</a> <a href="https://disabled.social/tags/GradedExercise" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#GradedExercise</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a>

Tom Kindlon2/Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath.<a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicE</a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEeps</a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFSME</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/NeuroME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NeuroME</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a>

Andrew GiffordExcellent summary of the biggest medical health scandal in UK - the neglect and gaslighting of us ME folks.<a href="https://www.youtube.com/watch?v=RiwX9Y0NbiQ&t=6s" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.youtube.com/watch?v=RiwX9Y0NbiQ&t=6s</a>A massive thanks to A Broken Battery for pulling this together.Sharing to help maximise its reach.<a href="https://mastodon.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://mastodon.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicE</a> <a href="https://mastodon.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://mastodon.social/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a> <a href="https://mastodon.social/tags/MillionsMissing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MillionsMissing</a> <a href="https://mastodon.social/tags/GreatestMedicalScandal" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#GreatestMedicalScandal</a> <a href="https://mastodon.social/tags/PhoneyScience" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PhoneyScience</a> <a href="https://mastodon.social/tags/GET" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#GET</a> <a href="https://mastodon.social/tags/GradedExerciseTherapy" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#GradedExerciseTherapy</a> <a href="https://mastodon.social/tags/NICE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NICE</a> <a href="https://mastodon.social/tags/NHS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NHS</a> <a href="https://mastodon.social/tags/DWP" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#DWP</a> <a href="https://mastodon.social/tags/HealthPolicy" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HealthPolicy</a>

Tom KindlonME Association:Telegraph Article: The ME Association and the NICE Guideline does not support the use of the Perrin Technique   Today, the Telegraph reports on the Perrin Technique with the article entitled ‘It’s the illness that has no cure. But this doctor believes he’s found answer to chronic fatigue syndrome'.   MEA provides comment   Read more: <a href="https://meassociation.org.uk/ofbf" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://meassociation.org.uk/ofbf</a>   <a href="https://disabled.social/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a> <a href="https://disabled.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicE</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a>

Tom KindlonMEA: ME/CFS: Watch Dr Shepherd's presentation to the Stockport ME GroupClick the link to watch or read the transcript:<a href="https://meassociation.org.uk/2024/10/me-cfs-watch-dr-shepherds-presentation-to-the-stockport-me-group/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://meassociation.org.uk/2024/10/me-cfs-watch-dr-shepherds-presentation-to-the-stockport-me-group/</a><a href="https://disabled.social/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a> <a href="https://disabled.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicE</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a>

Andrew GiffordMornings are the groggiest - from my photo project about ME/CFS:<a href="https://www.instagram.com/p/DBf4_36sVto/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.instagram.com/p/DBf4_36sVto/</a>ALT: colour photo of fatigued white 40-something male whose upper body is visible in the reflection of a patio door, where condensation on the glass hangs above his head like fog<a href="https://mastodon.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://mastodon.social/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a> <a href="https://mastodon.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicE</a> <a href="https://mastodon.social/tags/MECFSart" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFSart</a> <a href="https://mastodon.social/tags/MECFSphotography" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFSphotography</a> <a href="https://mastodon.social/tags/MyalgicEncphalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncphalomyelitis</a> <a href="https://mastodon.social/tags/photography" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#photography</a>

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