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#neisvoid

5 posts4 participants0 posts today
SingsongRaptor<p>Epiphany hit me last night that I might have hypoparathyroidism. It would explain the worsening of some of my problems (POTs, fibro, muscle spasms &amp; weakness, etc) &amp; why my mouth is so damn dry lately. I need an Endo, just fighting the executive dysfunction to call <br><a href="https://mastodon.art/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonie</span></a> <a href="https://mastodon.art/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a> <a href="https://mastodon.art/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NEISvoid</span></a></p>
SingsongRaptor<p>Thyroid ultrasound report came back. Nodule on the remaining thyroid is a little bigger but otherwise everything is unchanged and looks good 😊<br><a href="https://mastodon.art/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonie</span></a> <a href="https://mastodon.art/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a> <a href="https://mastodon.art/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NEISvoid</span></a></p>
SingsongRaptor<p>Top tier spoonie fashion accessory (no worries, was getting my first follow up ultrasound of my remaining thyroid half since I had the partial thyroidectomy last year. Gotta do it every year)</p><p><a href="https://mastodon.art/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonie</span></a> <a href="https://mastodon.art/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NEISvoid</span></a> <a href="https://mastodon.art/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a></p>
Bob K Mertz :distressedUS:<p><span class="h-card" translate="no"><a href="https://kind.social/@RavynWitch" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>RavynWitch</span></a></span><br>🫂 I hate when those days just show up out of nowhere. Hope you have good pain days in the very near future!</p><p><a href="https://techhub.social/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NEISvoid</span></a> <a href="https://techhub.social/tags/hypermobility" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hypermobility</span></a> <a href="https://techhub.social/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicPain</span></a></p>
Belle (she/her)<p>The whiplash of going from several good pain days and the imposter syndrome that comes with it…<br>To a day where everything hurts so bad I can barely walk. Ugh. <br><a href="https://kind.social/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NEISvoid</span></a> <a href="https://kind.social/tags/hypermobility" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hypermobility</span></a> <a href="https://kind.social/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicPain</span></a></p>
Deer Witch Nyx<p><span class="h-card" translate="no"><a href="https://mastodon.online/@catnip" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>catnip</span></a></span> echoing what <span class="h-card" translate="no"><a href="https://mastodon.art/@secretsloth" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>secretsloth</span></a></span> <span class="h-card" translate="no"><a href="https://mastodon.art/@RussSharek" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>RussSharek</span></a></span> <span class="h-card" translate="no"><a href="https://disabled.social/@vlrny" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>vlrny</span></a></span> said re: <a href="https://kind.social/tags/lonelinesscorps" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>lonelinesscorps</span></a> !</p><p>and offering a couple discord options. If anyone wants an invite to either lmk:</p><p>- the <a href="https://kind.social/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NEISvoid</span></a> discord is for people with chronic illness/pain <br>- the Long Covid Community discord which was spun-off from the Body Politic slack </p><p>both have health and non-health interest chat channels, and many community members with ME/CFS and other energy-limiting conditions</p>
Belle (she/her)<p>This is a whole mood this week. <br><a href="https://kind.social/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicPain</span></a> <a href="https://kind.social/tags/hypermobility" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hypermobility</span></a> <a href="https://kind.social/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NEISvoid</span></a></p>
Ashley Halliwell<p><strong>If y’all are ever like “Lēna, you’re such a genius”, please note that I just called my spouse panicking about “not having enough hands for this”.</strong></p><p>The task in question? Replacing the ball on my nose piercing. Surviving a massive stroke ain’t all fun and shitposts. -Allēna #NEISvoid</p><p></p><p><a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://opensorceryy.co/tag/neisvoid/" target="_blank">#NEISvoid</a></p>
maloki 🍍:ghostbat:<p>Reminder, your can always stop earlier! The timer is to stop you from overdoing it! <a href="https://rage.love/tags/NEISVoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NEISVoid</span></a> <a href="https://rage.love/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a></p>
maloki 🍍:ghostbat:<p>Find your level of ability today.<br>Set a short timer for what you want/need to do. 5-15min. According to your ability.</p><p>It might get you started to do extra things too, but when the time runs out don't add any extra big tasks, just finish what you're doing. 💚</p><p>Then reflect after, and the the next few days how it felt.</p><p><a href="https://rage.love/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> <a href="https://rage.love/tags/NEISVoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NEISVoid</span></a></p>
Belle (she/her)<p>Having a bit of an existential crisis today about my disability, because of how varied my day to day experience can be. Asking for this was hard. The fact that it didn’t surprise my doctor and he thought it was a good idea was somehow…harder?<br><a href="https://kind.social/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicPain</span></a> <a href="https://kind.social/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NEISvoid</span></a> <a href="https://kind.social/tags/hypermobility" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hypermobility</span></a></p>
Juliamon<p>I do not have enough spoons<br>to process every new attack on me<br>and also fight for survival</p><p>all I'm able to do<br>is hope against hope<br>that someone stronger can hear me</p><p>and that they will recognize<br>that I'm not the only one<br>who needs the help.</p><p><a href="https://kind.social/tags/neisvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>neisvoid</span></a></p>
Goose is eyeballing you<p>Appropriate <a href="https://spore.social/tags/pacing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pacing</span></a> and <a href="https://spore.social/tags/rest" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>rest</span></a> are my body's best friends. <a href="https://spore.social/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NEISvoid</span></a></p>
The Bird<p>I wrote my Disability Manifesto by thinking of all the Disabled people who have shaped my life. All the brilliant books I've read by Disabled people. All the art we've done, all the organizing we've done. Where we found ways to pace, work with our limitations, and where we won battles not despite our disability but of our Disabled selves. </p><p><a href="https://reshapingreality.org/2025/04/15/birds-disabled-manifesto/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">reshapingreality.org/2025/04/1</span><span class="invisible">5/birds-disabled-manifesto/</span></a> </p><p><a href="https://disabled.social/tags/Disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Disability</span></a> <a href="https://disabled.social/tags/Disabled" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Disabled</span></a> <a href="https://disabled.social/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NEISvoid</span></a> <a href="https://disabled.social/tags/Manifesto" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Manifesto</span></a> <a href="https://disabled.social/tags/DisabledJoy" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>DisabledJoy</span></a> <a href="https://disabled.social/tags/DisabledGrief" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>DisabledGrief</span></a> <a href="https://disabled.social/tags/Justice" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Justice</span></a> <a href="https://disabled.social/tags/DisabilityJustice" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>DisabilityJustice</span></a></p>
The Bird<p>How is everyone feeling? </p><p>What activism is happening in the Disabled Sphere?</p><p>How can we better support one another? </p><p>What ways can we make protests more accessible? </p><p>These are questions I've been thinking about lately. It's why I'm working on the collective access zine. (It's almost finished!) </p><p>EDIT: This was meant to start a discussion on what we're all working on and/or needing.</p><p><a href="https://disabled.social/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NEISvoid</span></a> <a href="https://disabled.social/tags/Disabled" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Disabled</span></a> <a href="https://disabled.social/tags/DisabledSocial" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>DisabledSocial</span></a> <a href="https://disabled.social/tags/Disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Disability</span></a> <a href="https://disabled.social/tags/Activism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Activism</span></a></p>
TheBird<p>Having migraines and chronic illness flare-ups has been brutal. However, I still managed to update the Shared Moments: Book 4: <a href="https://archiveofourown.org/works/59837869/chapters/165907621" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">archiveofourown.org/works/5983</span><span class="invisible">7869/chapters/165907621</span></a> <a href="https://ni.hil.ist/tags/Korrasami" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Korrasami</span></a> <a href="https://ni.hil.ist/tags/FanFiction" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>FanFiction</span></a> </p><p>It took me months due to how sick I've been. Writing is my main mode of coping, and when I can't use it to cope, I struggle with despair. So to finally finish that chapter and push it out to <a href="https://ni.hil.ist/tags/AO3" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>AO3</span></a> ? What a relief.</p><p>I just need to find a new balance with my health, my writing, my coping, my activism, and my resting. Ugh, it feels overwhelming when I write it out like that. <a href="https://ni.hil.ist/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicallyIll</span></a> <a href="https://ni.hil.ist/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NEISvoid</span></a></p>
Dr Ro Smith<p>I still can't believe how sick I have become over the last 13 years. There's just so much loss. <a href="https://wandering.shop/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NEISvoid</span></a> <a href="https://wandering.shop/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a></p>
Anna<p>In case it was missed in the post above, this is my updated article:</p><p>👉 <a href="https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">thecanary.co/global/world-anal</span><span class="invisible">ysis/2025/04/01/anna-severe-me-cfs/</span></a></p><p>My doctor predicts I will die if I don’t leave soon. </p><p>I need a solid, safe, home I can go to and recover to at least a stable baseline. It’s not full recovery, but it’s better than a slow death.</p><p>Help please 🙏 </p><p><a href="https://aus.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a> <a href="https://aus.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://aus.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> <a href="https://aus.social/tags/Hypothyroidism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Hypothyroidism</span></a> <a href="https://aus.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a> <a href="https://aus.social/tags/Neisvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Neisvoid</span></a> <a href="https://aus.social/tags/Abuse" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Abuse</span></a> <a href="https://aus.social/tags/Housing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Housing</span></a> <a href="https://aus.social/tags/Dysautonomia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Dysautonomia</span></a> <a href="https://aus.social/tags/SocialWork" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SocialWork</span></a> <a href="https://aus.social/tags/MedMastodon" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MedMastodon</span></a> <a href="https://aus.social/tags/PWLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PWLC</span></a> <a href="https://aus.social/tags/MutualAid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MutualAid</span></a> <br><a href="https://aus.social/tags/HumanRights" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>HumanRights</span></a> <a href="https://aus.social/tags/Press" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Press</span></a> <a href="https://aus.social/tags/Housing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Housing</span></a> <a href="https://aus.social/tags/Journalism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Journalism</span></a> <a href="https://aus.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> <a href="https://aus.social/tags/SevereME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SevereME</span></a> <a href="https://aus.social/tags/Abuse" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Abuse</span></a> <a href="https://aus.social/tags/Neglect" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Neglect</span></a> <a href="https://aus.social/tags/MutualAid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MutualAid</span></a> <a href="https://aus.social/tags/Narcissist" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Narcissist</span></a> <a href="https://aus.social/tags/Psychopath" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Psychopath</span></a> <a href="https://aus.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MCAS</span></a> <a href="https://aus.social/tags/MCAD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MCAD</span></a> <a href="https://aus.social/tags/Endometriosis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Endometriosis</span></a> <a href="https://aus.social/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicPain</span></a> <a href="https://aus.social/tags/CostOfLivingCrisis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CostOfLivingCrisis</span></a> <a href="https://aus.social/tags/Melbourne" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Melbourne</span></a> <a href="https://aus.social/tags/Australia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Australia</span></a> <a href="https://aus.social/tags/DomesticAbuse" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>DomesticAbuse</span></a> <a href="https://aus.social/tags/DV" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>DV</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>chronicillness</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/neisvoid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>neisvoid</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/disabilityjustice" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>disabilityjustice</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/disability" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>disability</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/socialwork" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>socialwork</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/dysautonomia" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>dysautonomia</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mutualaid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mutualaid</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/chronicpain" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>chronicpain</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mcas" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mcas</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/australia" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>australia</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/melbourne" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>melbourne</span></a></span></p>
Anna<p>PLEASE HELP ME ESCAPE!</p><p>Please <a href="https://aus.social/tags/boost" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>boost</span></a> and share to other platforms.🙏I don’t have energy left (see below).</p><p>Seems I’m famous (and real!) and desperate enough to go to the media for help. Yes, the trapped woman in the articles below is me.</p><p>👉Last year:<br><a href="https://www.thecanary.co/global/world-analysis/2024/05/03/me-cfs-anna-australia/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">thecanary.co/global/world-anal</span><span class="invisible">ysis/2024/05/03/me-cfs-anna-australia/</span></a></p><p>Now things are worse, I’m much sicker, being neglected and will die without a safe stable <a href="https://aus.social/tags/home" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>home</span></a>. Doctor’s words.</p><p>If not mentioned in the article, my father is a diagnosed <a href="https://aus.social/tags/narcissist" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>narcissist</span></a> with <a href="https://aus.social/tags/psychopathic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>psychopathic</span></a> &amp; <a href="https://aus.social/tags/antisocial" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>antisocial</span></a> tendencies by a <a href="https://aus.social/tags/psychiatrist" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>psychiatrist</span></a>. He urged me get away from my father asap because he is not a ‘safe person’ &amp; neither are the other family members who lured me back through the promise of help.They didn’t help they made me progressively worse to the point of almost incapacitation at stage of <a href="https://aus.social/tags/illness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>illness</span></a>.</p><p>👉A year later:<br><a href="https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">thecanary.co/global/world-anal</span><span class="invisible">ysis/2025/04/01/anna-severe-me-cfs/</span></a></p><p>I’ve tried every level of government, every service and they simply won’t help. </p><p>Are able help? Please ask people in real life if they have somewhere for me to go. Could they take me in (I can pay small rent)? A lot people have ‘big house, not enough money’ problem. I can help!</p><p>Is anybody an <a href="https://aus.social/tags/advocate" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>advocate</span></a>? I desperately need help. </p><p>I would be incredibly grateful for any help beyond words.🙏</p><p>Please read articles for full information.</p><p>Thank you for reading.</p><p><a href="https://aus.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a> <a href="https://aus.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://aus.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> <a href="https://aus.social/tags/Hypothyroidism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Hypothyroidism</span></a> <a href="https://aus.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a> <a href="https://aus.social/tags/Neisvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Neisvoid</span></a> <a href="https://aus.social/tags/Abuse" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Abuse</span></a> <a href="https://aus.social/tags/Housing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Housing</span></a> <a href="https://aus.social/tags/Dysautonomia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Dysautonomia</span></a> <a href="https://aus.social/tags/SocialWork" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SocialWork</span></a> <a href="https://aus.social/tags/MedMastodon" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MedMastodon</span></a> <a href="https://aus.social/tags/PWLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PWLC</span></a> <a href="https://aus.social/tags/MutualAid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MutualAid</span></a> <br><a href="https://aus.social/tags/HumanRights" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>HumanRights</span></a> <a href="https://aus.social/tags/Press" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Press</span></a> <a href="https://aus.social/tags/Housing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Housing</span></a> <a href="https://aus.social/tags/Journalism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Journalism</span></a> <a href="https://aus.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> <a href="https://aus.social/tags/SevereME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SevereME</span></a> <a href="https://aus.social/tags/Abuse" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Abuse</span></a> <a href="https://aus.social/tags/Neglect" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Neglect</span></a> <a href="https://aus.social/tags/MutualAid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MutualAid</span></a> <a href="https://aus.social/tags/Narcissist" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Narcissist</span></a> <a href="https://aus.social/tags/Psychopath" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Psychopath</span></a></p>
Sheru (she/her)<p>Pain flares always leave me so wrung out. And more often than not, weepy and emotional.</p><p>Even when I have someone actively helping and taking care of me,it's so hard and isolating. And a bit scary if I'm being real.</p><p>Just feeling like one huge raw, exposed nerve right now.</p><p><a href="https://wandering.shop/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicPain</span></a> <a href="https://wandering.shop/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NEISvoid</span></a></p>